A protracted overdue replace: Patreon, publication, and extra


It’s been awhile, and although I do share tidbits extra often on social media and through my publication, I wished to do a full write up of what has been occurring. I haven’t revealed a weblog publish since April, so it is a lengthy overdue replace. It shares some thrilling skilled information, but in addition the private because it pertains to my well being.

This group has been an enormous a part of what has saved me afloat throughout the previous couple of, tough years. With my restricted bandwidth as a result of ongoing spinal cerebrospinal (CSF) leak, I’ve needed to minimize out a few of the work I need to do. The weblog was placed on hiatus first, as a result of updating on social media (primarily Instagram) is faster and fewer labour intensive.

However whereas I’ve not been placing out new posts right here, I’ve spent many hours updating the backend of the web site, and dealing on various different issues that I wished to share. I’ve additionally seen specialists and discovered extra about my physique, sufficient that that data sheds a really completely different gentle on the a few years of power ache I endured previous to my CSF leak.

It has taken time to course of the thread that now connects dots I by no means thought to attach, and I wished to maintain my group up to date.

Private Updates

Just a few updates about how I’m feeling, these related dots, and the place I’m residing.

Shifting to Gatineau, Quebec and Dwelling Semi-Independently

Since Could, I’ve been residing in Gatineau, throughout the river from Ottawa. My brother lives in Ottawa, and my plan is to ultimately transfer there as properly. For now, although, Gatineau has been a stunning center floor. I obtained to spend a summer season wandering right down to the water, seeing my household, and studying find out how to reside largely alone, with a leak.

Gatineau Quebec
Unfiltered / unedited picture from a sundown over the Ottawa River, taken from the Gatineau aspect.

My brother and his accomplice come over as soon as per week to assist with issues I can not do, like getting groceries for me, and doing my laundry and my vacuuming. I’m fortunate that I’ve them to choose up the slack that my leak steals away, and I’ll by no means complain about getting extra time with individuals I like a lot.

At first, adjusting to the house felt actually deflating. There have been many issues that I couldn’t attain, or use. The mattress was too low and really painful to get out and in of. The freezer was a drawer below the fridge, so I couldn’t open it with out making my CSF leak worse. The dishes and pots have been too heavy for me to clean myself, or use comfortably. The listing went on.

These are fixable issues, in fact. I obtained a mattress pad, a tiny freezer, and new light-weight dishes and a small pot to make use of, thanks in no small half to the Amazon present playing cards you bought me for my birthday.

However the preliminary weeks right here felt actually deflating. As people we’re so good at adjusting. Typically too good, and we neglect the place we actually are. The angle I misplaced was that I’m really extra disabled than I remembered, one thing that hit me arduous once I moved into this house.

Like anything, adjusting to this new life has its ups and downs, and ultimately I obtained previous the frustration and began strategizing methods to repair the issues I used to be dealing with. I additionally obtained a kitchen rolling cart, plenty of canvas storage bins since every part has to take a seat on counters to be reachable for me, and some different issues that make the place extra comfy.

I used to be by no means certain if I’d even be capable to reside independently once more. So whereas there’s a lot I want I may do, I’m very grateful that I’m able to have extra autonomy after years of being so depending on others for each little factor.

jodi ettenberg gatineau quebec
It’s 3.5 km to the Ottawa River and again, and I’m past grateful that I’m able to stroll there when my physique permits.

Connecting the dots

As I discussed, my spinal CSF leak remains to be lively. However my physique both appears to have produced extra CSF, giving me some extra “uptime”, or it has gotten barely higher. Since my leak, I’ve had immune and different points which have cropped up or worsened. I used to be in a position, with the assistance of labs and specialists, to lastly join the dots. You may learn extra about that course of on my private website as follows:

Mast cells are “sentinels” of the immune system, a sort of white blood cell that helps management the immune processes within the physique. They’re known as resident immune cells as a result of they reside in tissues and never in our bloodstream. They usually reside in tissues everywhere in the physique, from the connective tissue, to the endothelial cells, to the epithelial cells, and even within the mind.

Enterprise Updates

A number of the tasks I’ve been engaged on within the months since I final revealed.

Sharing Sources about Ache on Patreon

I created the Patreon as a method to settle for assist from this group, however it’s slowly morphing into a spot the place I additionally share assets for people who find themselves struggling for power ache, or those that know somebody who’s in ache.

The unhappy actuality is that almost all of us are in a kind of two classes.

Over time, I’ve obtained many questions on how I’ve coped with my very own ache ranges. Now, I’m getting questions on how somebody can assist an individual in ache. So the Patreon’s AMAs are a spot the place I reply these questions, and add extra assets.

The posts I’ve shared there additionally go into how I made the house I’m in accessible, and what adjustments to the setup allowed me to deal with residing alone with the disabilities I now have. Most not too long ago, as typically individuals really feel dangerous about asking for assist or accepting assist, somebody requested me to speak about find out how to discuss to somebody in ache to assist them get assist if they’re cussed. (I’ll be answering this within the subsequent AMA).

From suggestions to this point, these have been actually helpful. I sit up for sharing extra.

Additionally, I’m now a Patreon ambassador! I obtained an e mail from them in the summertime, asking if I’d be excited by making use of for an ambassadorship programme they have been constructing. I’m one in all a small group of creators (out of their 200,000 customers) who have been accepted.

It’s nonetheless fairly new, and to this point it’s been beautiful to fulfill some actually attention-grabbing, tremendous creative individuals. The ambassadorship is unpaid, however options workshop—I’ve attended a couple of to this point—and rewarding breakout rooms with others within the programme to share methods and issues/successes. Different perks embody 1:1 product assist, social media options, enjoyable swag for my Patreon group, in addition to paid alternatives to take part in issues like product focus teams or inventive collaborations with their crew.

I don’t understand how they discovered me, and it’s intimidating as a result of most of the different creators have upwards of 2000 Patrons, however I’m trying ahead to taking part! On condition that it was all of you who requested me to begin a Patreon, I’ve this group to thank!

Should you’re excited by becoming a member of the Patreon group, you are able to do so right here.

A One-Time Help Choice

After I launched my Patreon, I obtained messages from readers who wished to contribute and/or assist me in my work through a one-time fee. I didn’t have that in place, however do now.

A lot of you requested for a one-time assist possibility

The Curious About All the things E-newsletter

Regardless of all this pleasure of shifting to a brand new place, I’ve managed to maintain my publication working. I’ve been enjoying round with format (and emojis, I can’t assist myself), and primarily spotlighting a couple of essential reads every month, together with extra enjoyable photo-essays and quirky items I discover. I typically embody private updates, however the focus of the publication is on proficient and/or essential writing price studying.

Whereas it’s on Substack, and plenty of writers have moved to a paid publication mannequin, I don’t plan to take action. The Patreon is the first assist system for my revenue, alongside celiac playing cards and the meals maps store. The publication I plan to maintain free.

Even when this website has been extra dormant than I would really like, I really feel joyful that CAE has gone out each month for the final 11 months.

You may join beneath if you’re excited by receiving it.

A Massive Piece about Psychological Mindset (Coming Quickly)

I had a publish known as Get By means of Horrible Occasions that I had on this website, however I’ve quickly taken it down as I deliberate to publish it individually. I’ve been engaged on this piece over the last whereas and it’s nonetheless in modifying, however I’m excited to share it on the new JE website.

Redesign of Authorized Nomads:

You will have seen that the location is slightly completely different!

Arthur the raven, my mascot, could be very outstanding. Ravens are such extremely curious birds, and I selected one as my website’s throughline as a way to spotlight that I nonetheless am too, albeit another way to earlier than.

arthur the raven legal nomads
Yay, Arthur the raven!

And, a brand new slogan: interested by every part. I’m now not telling tales by meals, in order that slogan needed to go. The brand new emblem displays a divergence from my prior lifetime of journey and meals, but in addition the reality of who I at all times was: somebody who wished to study as a lot as doable.

I began to really feel actually dissonant once I seemed on the ‘outdated’ Authorized Nomads, so this displays extra of the place I’m in life whereas nonetheless sustaining the same construction.

I’ve added well being and power ache to the primary classes on the house web page, too, since they’re now an even bigger a part of what I write about.

I had actually particular concepts of what I wished, in order with the final redesign to the location I supplied the property (new logos, Arthur the Raven, and many others.) to an internet developer as an alternative of hiring somebody who did branding in addition to improvement. The property have been inked by my artist-in-Authorized-Nomadsness Ella F. Sanders. The redesign was carried out by an internet developer who works for fellow journey blogger Mike’s net improvement firm. Whereas her work was paid, he donated his personal time professional bono to assist supervise the undertaking.

Publish Overhauls and Web page Updates:

My morning routine is to rise up, make espresso, after which do some work on the web site till I have to take a break.

This has allowed me to slowly replace pages and posts over time, and maintain Authorized Nomads extra present.

Amongst them:

  • The gluten free guides are up to date for 2021. They’re right here.
  • The gluten free New York Metropolis information has additionally been up to date to replicate restaurant closures and a few newcomers to the scene which might be 100% gluten free.
  • I added a historical past of Belize part, and a “the place is Belize positioned” part, as a result of consider it or not that’s the most typical search time period for this publish. It’s additionally obtained COVID-19 guidelines for visiting, in the event you have been selecting to danger going now.
  • I up to date the Vietnamese Egg Espresso Recipe with locations to get it in North America, and new items and movies in regards to the candy deal with.
  • I up to date my piece on sleep points and jet lag with details about find out how to sleep higher, and new research about chronomedicine and Covid-19.
  • I up to date my Vipassana Meditation retreat expertise with some new information in regards to the risks of these sorts of retreats, and the way in some instances they’ll result in a psychological break.
  • The Different Careers for Attorneys web page has been up to date to incorporate pandemic data, the rise of consultants within the authorized subject, and a extra clear breakdown of find out how to go about shifting careers once you really feel overwhelmed serious about how to take action.
  • In November 2021, I up to date my historical past of chili peppers publish to incorporate the 2021 Nobel Prize successful analysis on capsaicin, somatosensory receptors, and ache.

RSS-to-E-mail Adjustments: Feedburner isn’t any extra. RIP Feedburner.

Google has been threatening to chop RSS-to-email choices for Feedburner for a few years. The service was deprecated years in the past, and this July they lastly stated that they have been carried out supporting that possibility. So I had to determine what service to make use of as a way to get these individuals their emails. (Since I barely write right here, I had plenty of time to do that!)

For these of you who opted to obtain Authorized Nomads updates through e mail, new posts might be despatched by an organization known as ConvertKit. I used to be planning on switching to them proper earlier than my CSF leak occurred, so it solely took me an additional few years. My buddy Nathan began the corporate and is a extremely beautiful human being; I’d a lot quite give my cash to proficient pals than strangers!

Should you’re not getting Authorized Nomads through e mail, you’ll be able to join through the shape beneath. That is only for LN posts (about each six months, when it comes to publishing schedule nowadays!). My month-to-month publication above is separate.

Should you have been already subscribed to get Authorized Nomads posts by e mail, you do not want to do something. I wished to clarify why the emails look completely different, and let everybody know they’ll additionally join that approach if they like.


That’s it for now!

Whereas the ache I’m in by no means goes away, these tasks and my newfound autonomy have helped make these previous couple of months a few of the finest in years. I is probably not cellular or touring the world anymore, however I consider that I’m in a position to assist extra individuals than ever earlier than.

Whether or not it’s serving to navigate powerful occasions, understanding ache and loss, or simply giving extra context to the sicknesses of family members, this work feels helpful.

And feeling helpful goes a good distance towards life satisfaction for me.

Thanks for permitting me to share this journey with you.

Till subsequent time,
Jodi



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